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Myli

Myli was diagnosed with left ventricular hypertrophy, coarctation of the aorta, pulmonary valve stenosis and a rare disorder called CFC 

The Local Heart Foundation supported lodging, food, and gas 3 times while traveling to Texas Children's Hospital for heart treatment.

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Dakota and Myli 

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Dakota and Myli embarked on a journey to New York City to meet Dr. Bruce Gelb, who is on the National CFC Board, regarding a trial drug designed for CFC patients with cardiomyopathy. Thanks to the foundation's generous support, they were able to provide lodging and assist with meals. This visit represents a significant step in Myli's journey. If you would like to follow more of Myli's story, click the link below to visit her Facebook Page. 

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